Welcome to Lizzie Clark's Page
Lizzie Clark
Lizzie Clark
When I was asked if I would be an Honoree at the Brewer’s Ball, Charlottesville’s largest Cystic Fibrosis Foundation fundraiser, I hesitated. I am a pretty busy person; I run a business, I raise children, I show up for friends and family. But there it was: I show up for family. The answer had to be yes.
In August 2001, my nephew William was born with Cystic Fibrosis (CF). I can still remember an exhausted conversation I had with my brother a couple weeks after William was born. William was in the NICU and Cal was incredibly stressed. I had called to check in and remember listening to him say that on a scale of 1-10, his fears around 9/11 (only two weeks after William was born) were a 4 and his fears for William were an 11. For a guy that lives around a 0 or a 1, he made me understand in that moment how terrifying having a sick child could be. Please help me eradicate this disease by supporting the Cystic Fibrosis Foundation and their mission to find a cure for CF.
Cystic Fibrosis is caused by a genetic mutation which causes the mucus in the body to become thick, sticky and even crystallize. While it is most often associated with lung function, CF also attacks the other organs in the body and can cause a variety of organ failures. William, and CF warriors like him, have to battle daily to do so many things the rest of us take for granted. Despite his treatments, frequent hospitalizations, surgeries and illnesses, William is finishing up his final year at the College of Charleston and is a sponsored fly fisherman with several fly fishing retail and travel companies. He is a marvel and I am so proud of him.
The science is moving fast and we need to keep funding it. The genetic editing and therapy breakthroughs being funded by the CFF not only pave the way to more tomorrows for patients like William, they help inform the development of therapies for other genetic diseases as well. Everything about this effort is a win. Help make CF stand for Cure Found.
I hope you can purchase a ticket and join me at the Brewer’s Ball on October 9. If you can’t make it, please consider making a donation to the foundation and supporting our fight to cure Cystic Fibrosis.
In August 2001, my nephew William was born with Cystic Fibrosis (CF). I can still remember an exhausted conversation I had with my brother a couple weeks after William was born. William was in the NICU and Cal was incredibly stressed. I had called to check in and remember listening to him say that on a scale of 1-10, his fears around 9/11 (only two weeks after William was born) were a 4 and his fears for William were an 11. For a guy that lives around a 0 or a 1, he made me understand in that moment how terrifying having a sick child could be. Please help me eradicate this disease by supporting the Cystic Fibrosis Foundation and their mission to find a cure for CF.
Cystic Fibrosis is caused by a genetic mutation which causes the mucus in the body to become thick, sticky and even crystallize. While it is most often associated with lung function, CF also attacks the other organs in the body and can cause a variety of organ failures. William, and CF warriors like him, have to battle daily to do so many things the rest of us take for granted. Despite his treatments, frequent hospitalizations, surgeries and illnesses, William is finishing up his final year at the College of Charleston and is a sponsored fly fisherman with several fly fishing retail and travel companies. He is a marvel and I am so proud of him.
The science is moving fast and we need to keep funding it. The genetic editing and therapy breakthroughs being funded by the CFF not only pave the way to more tomorrows for patients like William, they help inform the development of therapies for other genetic diseases as well. Everything about this effort is a win. Help make CF stand for Cure Found.
I hope you can purchase a ticket and join me at the Brewer’s Ball on October 9. If you can’t make it, please consider making a donation to the foundation and supporting our fight to cure Cystic Fibrosis.
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