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Let’s Cure CF Together!

Brittney Haas

Brittney Haas

Hello! I'm Brittney and I am so honored to be nominated as a 2022 Columbus' Finest Honoree. Over the next 4 months, I am committed to raising funds to advance the mission of the Cystic Fibrosis Foundation. This is a cause near and dear to my heart. I originally discovered my passion for CF when I began working as a nurse on the Pulmonary floor at Nationwide Children's Hospital in 2016. I came to know our patients very well as they often were admitted for two weeks at a time for IV antibiotics. I became a Nurse Practitioner in 2018 and have specialized in CF ever since. I currently work outpatient in the Adult and Infant Cystic Fibrosis clinics. Working with people with CF across the lifespan both inpatient and outpatient has been an incredible gift that has changed my life forever. 

Cystic fibrosis is a genetic, progressive disease that causes thick sticky mucus to accumulate in the organs. CF is most known for affecting the lungs and digestive system, but it impacts the entire body. There are more than 30,000 people in the US living with CF and more 70,000 people worldwide. CF affects people of every racial and ethnic group and global awareness and access to diagnostic testing and treatments is critical.

CF care has made miraculous advances over the past 60 years. Parents used to be told their child with CF would not live long enough to attend elementary school, most commonly due to the lung damage caused by CF. Today, more than half of people with CF are age 18 or older and the median survival age of people with CF is over 40. This is due to early identification of CF through universal newborn screening as well as advancement in treatments and medications that help clear out the thick sticky mucus in the lungs. The CF Foundation has played a large role in supporting research efforts to advance the care of CF. 

The biggest advancement in CF treatment is the development of CFTR modulators. These are medicines that work at the cellular level to treat the underlying cause of CF by thinning out the mucus and have completely changed the trajectory of CF disease. The first CFTR modulator was approved by the FDA in 2012, but was only available to a small number of people with specific genetic mutations. These medicines have now been expanded to over 90% of people through CF with the approval of the a triple combination CFTR modulator called Trikafta in 2019. Unfortunately, there are people with CF who have genetic mutations that do not qualify for CFTR modulators. This is why we continue to search for a cure for ALL PEOPLE with CF. 

May is Cystic Fibrosis Awareness Month and I look forward to sharing more information with you about CF. To learn more about CF and the CF Foundation, visit www.cff.org

Over the next 4 months, I will be raising money to help support vital CF research, medical and education programs. This campaign runs until August and ends with the celebratory Brewer's Ball at the Columbus Vue on August 18. Buying tickets to this event is just one way you can support my fundraising efforts. This event features live music and DJ entertainment, local food and beverage tastings and a silent auction. It is a wonderful way to connect with other members of the CF community. 

You can also support my fundraising efforts and the CFF by making a donation on this page. Making a donation is easy and secure! Just click the Donate button on this page to make a donation that will be credited to my fundraising efforts. Every dollar counts and any amount you can donate is greatly appreciated!  

I thank you from the bottom of my heart for your support and generosity. Together, we WILL make CF stand for Cure Found!

 
MAY
4

It's officially CF Awareness Month! The theme this year is "More Than a Lung Disease." Did you know cystic fibrosis also affects the sinuses, intestines, liver, pancreas, skin, reproductive tract??

APR
28

And so it begins!! Let’s start raising money!

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$2,170
raised of $20,000 goal
 

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