Hello my name is Ryleigh Powers and I have cystic fibrosis as well as cystic fibrosis related diabetes. I have always had an amazing support system when it came to family and friends but it takes a lot of people to make a difference. If I know you or you knew my brother, Tyler Powers, then you know this is such an important thing to my family and I. Tyler was 21 when he passed away from needing a double lung transplant as well as a kidney and liver. I myself am 24 and am living proof that Cystic Fibrosis will not run my life. Last year I decided to take a risk after working in a salon for 3 years to go out on my own, I now operate a mini salon of my own. For me this was huge accomplishment that wouldn't have been possible without the research and development for finding a cure, Trikafta has made such an impact on my life and i hope to see in my lifetime that Cystic Fibrosis (CF) stands for Cure Found.

I am being honored by the Cystic Fibrosis Foundation at a special event recognizing outstanding professionals in my community. In accepting this distinction, I have committed to raise money to help the Foundation realize its mission of curing cystic fibrosis (CF) and providing all people with CF the opportunity to lead long, fulfilling lives.

Please help me meet my fundraising goal by making a donation. By supporting my fundraising efforts, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. Sixty years ago, children with CF usually did not live long enough to attend elementary school. Today, because of Foundation-supported research and care, the median survival age of people with CF is over 50. Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

To learn more about CF and the CF Foundation, visit www.cff.org. Together, we can make a difference in the lives of those with cystic fibrosis. Thank you for supporting the mission of the CF Foundation!