On Thursday May 6th, I will be honored by the Cystic Fibrosis Foundation at a special (virtual) event recognizing outstanding young professionals in the community. In accepting this distinction, I have committed to raise money to support the Cystic Fibrosis Foundation realize its mission of controlling and curing cystic fibrosis.
Cystic fibrosis (CF) is a devastating genetic disease that affects the lungs and digestive system. More than ten million Americans are symptomless carriers of the defective CF gene. Advances continue to be made in finding a cure, but your help is needed now, more than ever, to help keep up the momentum of this life-saving research. Sixty years ago, children with CF usually did not live long enough to attend elementary school. Today, because of Foundation-supported research and care, the median survival age of people with CF is about 40.
As many of you know, my family has been personally affected by this disease. My mother, Suzanne, was diagnosed with CF as a teenager. It is through the efforts of the CF Foundation and research that she has been able to live a remarkable life, well past what was thought to be possible when she was diagnosed. In fact, just last week she started a new drug, Trikafta, which is the first triple-combination therapy developed to treat the underlying cause of CF. This was very exciting news for our family, and we’re very grateful for the support of the Cystic Fibrosis Foundation!
I thank you in advance for your support in helping me reach my goal of $2,500 to support the Cystic Fibrosis Foundation in their research aimed at controlling and curing this terrible disease. Any amount that you can contribute will go a long way for my mother and others.