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Bounce Away Cystic Fibrosis

Bounce Away Cystic Fibrosis
Event Info

Date: 
October 18, 2019

Location: 
University Church Preschool

Contact: 
 

Hello UCP Families! My name is Staci Hardwick and I am Selah Hardwick's Mom (in Green Room at UCP). You're invited to join my passion fundraising event "Bounce Away Cystic Fibrosis" and help make CF stand for Cure Found. 

 Cystic fibrosis is a devastating genetic disease that affects the lungs and digestive system. My husband, Jordan, has Cystic Fibrosis and our daughter Selah is a carrier. Jordan's current daily routine involves 30 minutes of chest percussion therapy with a vest twice daily, 2 different nebulized breathing treatment medications, enzymes with each meal or snack, nasal sinus rinses, inhaled antibiotics, occasional IV and oral antibiotics, and lumacaftor/ivacaftor (Orkambi). Orkambi is one of the new drugs that was recently developed to help maintain lung function in CF patients targeting the defect itself. Jordan has been on Orkambi for over two years now and it really has helped maintain his lung function numbers. On the horizon is a new triple combo that is showing promise to be even more effective. Advances continue to be made in finding a cure, but your help is needed now -- more than ever -- to help keep up the momentum of this life-saving research. Sixty years ago, children with CF usually did not live long enough to attend elementary school. Today, because of Foundation-supported research and care, the median survival age of people with CF is about 40. This is remarkable progress, but not good enough. More than ten million Americans are symptomless carriers of the defective CF gene and we continue to lose precious lives to CF every day. I continue to support the research by the Cystic Fibrosis Foundation because my dream is that Jordan will get to watch Selah grow up! To learn more about CF and the CF Foundation, visit cff.org. Together, we can make a difference in the lives of those with cystic fibrosis. Thank you for supporting the mission of the CF Foundation! 


This fun and exciting event will help raise funds to support my Finest fundraising efforts, and help the Cystic Fibrosis Foundation forward their mission to find a cure for all people with cystic fibrosis. 
 

The Cystic Fibrosis Foundation has fueled dramatic improvements in cystic fibrosis research and care. Because of the Foundation, people with CF are living longer and healthier lives.  The outlook for people with CF continues to improve year after year.
 

Thank you in advance for your support and participation to this event, you are helping to make a difference for people living with CF.