Welcome to Emily Patronik's Page
Emily Patronik
Emily Patronik
I am honored to be apart of the 2025 Buffalo's Finest recognized by the Cystic Fibrosis Foundation at a special event recognizing outstanding professionals in my community, and I am reaching out for your partnership in ending this disease.
In accepting this distinction for outstanding professionals, I have committed to raise money to help the Foundation realize its mission of curing cystic fibrosis (CF) and providing all people with CF the opportunity to lead long, fulfilling lives.
Nearly 40,000 people in the United States have CF: it is a progressive, genetic disease that affects the lungs, pancreas, and other organs.
I first learned about Cystic Fibrosis when my sister became a clinical dietician for both the pediatric and adult program at the Cystic Fibrosis Center of Western New York. After learning more about Cystic Fibrosis and how it affects others, I wanted to get more involved. I have volunteered at multiple events and also attended the Rock the Red Carpet event the past few years. Throughout the years I have met more and more individuals with CF and hearing their personal stories which continues to fuel my motivation to advocating and fundraising for a cure.
Sixty years ago, children with CF usually did not live long enough to attend elementary school. That’s not much older than my own son. However, today - because of research and care - the median survival age of people with CF is over 50.
The CF Foundation - in part because of the generosity of folks like yourself - has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF.
What does this mean for the everyday person? Longer, fuller, healthier lives; it means more years with loved ones; it means memories for countless people around us.
Yet, many people with CF do not, or cannot, benefit from existing therapies. The vision for us should be leaving no one with CF behind - which is why I am reaching out for your help.
By joining me, and my fundraising efforts, you have an opportunity to help in ending this disease. To be honored is humbling; to have your support is life-saving and orders of magnitude greater to me.
Thank you for whatever help you can make in this effort!
In accepting this distinction for outstanding professionals, I have committed to raise money to help the Foundation realize its mission of curing cystic fibrosis (CF) and providing all people with CF the opportunity to lead long, fulfilling lives.
Nearly 40,000 people in the United States have CF: it is a progressive, genetic disease that affects the lungs, pancreas, and other organs.
I first learned about Cystic Fibrosis when my sister became a clinical dietician for both the pediatric and adult program at the Cystic Fibrosis Center of Western New York. After learning more about Cystic Fibrosis and how it affects others, I wanted to get more involved. I have volunteered at multiple events and also attended the Rock the Red Carpet event the past few years. Throughout the years I have met more and more individuals with CF and hearing their personal stories which continues to fuel my motivation to advocating and fundraising for a cure.
Sixty years ago, children with CF usually did not live long enough to attend elementary school. That’s not much older than my own son. However, today - because of research and care - the median survival age of people with CF is over 50.
The CF Foundation - in part because of the generosity of folks like yourself - has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF.
What does this mean for the everyday person? Longer, fuller, healthier lives; it means more years with loved ones; it means memories for countless people around us.
Yet, many people with CF do not, or cannot, benefit from existing therapies. The vision for us should be leaving no one with CF behind - which is why I am reaching out for your help.
By joining me, and my fundraising efforts, you have an opportunity to help in ending this disease. To be honored is humbling; to have your support is life-saving and orders of magnitude greater to me.
Thank you for whatever help you can make in this effort!
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