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Welcome to Kevin O'Rourke's Page

Kevin O'rourke

Kevin O'Rourke

A friendship.
A community of music lovers that became like family.
A mission that can't be extinguished.

These are the reasons I'm passionate about being involved with the Cystic Fibrosis Foundation in the development of treatment and an ultimate cure. I'm honored to represent a community of friends and the spirit of a very special one, Sean Sullivan in this competition.

I lost Sean in early February of 2022 and the impact still affects me. I particularly felt this in the community of friends where I first met Sean - we're all music lovers, many who grew up with and all who are fans of the Golden Age of music, the early 90's. Sean was a force of nature, an entirely irreplaceable part of this community; this group stands behind me with a humbling level of support. 

We've been blessed to meet others impacted by our loss, from the brothers/sisters/nephews/nieces/cousins and so on we've heard so much about, even others in the CF community who knew Sean and learned something from him. This has only made our resolve stronger to continue, please consider supporting us in our mission.

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. Sixty years ago, children with CF usually did not live long enough to attend elementary school. Today, because of Foundation-supported research and care, the median survival age of people with CF is over 50. Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

To learn more about CF and the CF Foundation, visit www.cff.org. Together, we can make a difference in the lives of those with cystic fibrosis. Thank you for supporting the mission of the CF Foundation!


raised of $20,000 goal

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