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Welcome to Scribner Malloni's Page

Scribner Malloni

Scribner Malloni

I will soon be honored by the Cystic Fibrosis Foundation at a special event recognizing outstanding young professionals in my community. In accepting this distinction, I have committed to raise money to help the Foundation realize its mission of controlling and curing cystic fibrosis (CF).

I am doing this on behalf of a very special 6 yr old, Elizabeth and all those battling CF. 
Click here to meet Elizabeth and find out how powerful your donation will be!

Please help me meet my fundraising goal by making a donation. Your generous gift will be used efficiently and effectively to help support vital CF research, medical and education programs.

Making a donation is easy and secure! Just click the Donate button on this page to make a donation that will be credited to my fundraising efforts. Any amount you can donate will be greatly appreciated!

Cystic fibrosis is a devastating genetic disease that affects the lungs and digestive system. More than ten million Americans are symptomless carriers of the defective CF gene. Advances continue to be made in finding a cure, but your help is needed now -- more than ever -- to help keep up the momentum of this life-saving research. Sixty years ago, children with CF usually did not live long enough to attend elementary school. Today, because of Foundation-supported research and care, the median survival age of people with CF is about 40. This is remarkable progress, but not good enough. We continue to lose precious lives to CF every day. To learn more about CF and the CF Foundation, visit www.cff.org. Together, we can make a difference in the lives of those with cystic fibrosis. Thank you for supporting the mission of the CF Foundation!
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I am 1/2 way through my fundraising challenge and we are in the lead! More important than me winning however is finding a cure! I have told you all the positive things your money has done so far, but here is what is still needed. The path to a cure is challenging but possible and possible in Elizabeth's lifetime! Let's make it happen!

AUG
26

Once a quarter Elizabeth visits her team of Doctors, Nurses, Respitory Therapists, Nutritionist, and any other specialist she needs to check in on her. Todays visit required her annual blood draw which mandates promises of ice cream. Her lung function was high, her weight and height were up and all indications at the moment is that she is thriving thanks to the new modulator drugs she is on. They are cautious to remind her parents not to let their guard down and that a big cold and flu season, as well as Covid, is on its way. Every lung infection makes it harder for her to fight off the next infection. Aggressive antibiotics are needed to fight off the bacteria that are so dangerous for CF patients. While necessary those antibiotics come with their own problems. With our help we can help the CF Foundation find a cure for Elizabeth and all those with CF. UNTIL IT'S DONE!

Clinic Day for Elizabeth!

AUG
23

1st day of school is always chaotic. Getting little man up and out the door is madness! For Elizabeth, she not only has to get dressed, eat breakfast, brush her teeth and find her shoes. She also has to fit in 30 minutes of chest therapy to loosen The mucus in her lungs and do 3 nebulizer medicines to open and clear her airway. Then there is the anxiety that all parents feel dropping their kid off on the first day. Now imagine Elizabeth’s parents worrying if she picks up a cold, much less Covid, that could be the start of an antibiotic resistant infection that could cause permanent lung damage. It shouldn’t have to be this way and with the ground breaking research the CF Foundation is doing it might not be! Thanks to all of you that have supported my campaign! Let’s make CF stand for Cure Found!

1st Day of School!

AUG
21

3 weeks into my 10 week challenge and I am blown away by your generosity! Want to see what your dollars are doing? Take a look at all the drug development in the works. Your dollars are moving this research forward! Let's not stop here!

AUG
11

One week down, 9 to go! Thanks to everyone who has donated to my campaign so far! I am blown away by your generosity! The CF community has a saying, "Until It's Done!". That's because even though kids like Elizabeth are starting to see the benefits of the ground breaking research from the foundation there are many in the CF community that do not have treatments that work for them yet. YET! Lets help make it happen for everyone with CF. UNTIL IT'S DONE!

I got to meet our CF Ambassadors this week! Meet Sydney, a 1 year old with CF. Her amazing parents Christine and Steve have so much hope thanks to your generous donations!

AUG
4

Meet Elizabeth! She is 6 yrs old, my son’s good friend, loves to bake, wants to be a dress designer when she grows up and has Cystic Fibrosis. For my son Cystic Fibrosis means they get to hang out playing Mario Cart or watching movies for 1/2 hour in the afternoon while Elizabeth does her physical therapy. This entails her wearing a vest that pulses to help loosen excess mucus in her lungs while she wears a nebulizer mask to administer medications to thin the mucus making it easier to expel. While it is a highlight of the kids day to get some screen time I know it is just one piece in daily regiment that is required to keep Elizabeth healthy. Without these treatments aggressive, antibiotic resistant bacteria can take hold and cause permanent lung damage that eventual leads to lung failure for many CF patients. Elizabeth does have to do twice daily physical therapy and take numerous pills and inhaled medications each day but she is actually one of the most fortunate CF patients. Because of her specific mutation that causes her CF she was among the 1st to get to take advantage of new medications at an early age that have changed the course of the disease. In fact she has not been hospitalized since she started them and has her best chance to live a normal life because of them! These medications do not work for all mutation of CF however. By her age most kids with CF are already suffering with the progressive, permanent lung damage that will ultimately shorten their lives. How can we help get these treatments to everyone with CF you ask? Here are a few ways… YOU CAN DONATE! Click the Donation button on this page to make a donation to his campaign and help make CF stand for Cure Found!   YOU CAN DRINK BEER! Click the link below to join us at the Festivale Beer Tasting at the DANK Haus on September 30th https://events.cff.org/chicagofestivale/Scrib?tab=MyPage   YOU CAN GET DRESSED UP AND CELEBRATE WITH US AT THE FINAL CELEBRATION! Click the Buy Tickets Button to join us on October 13th at the Chicago’s Magnificent Cocktail Party where we will find out if I am the fundraising winner!

Elizabeth & Ayres Hanging Out For Her Daily Physical Therapy

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$12,000
raised of $10,000 goal
 

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