I am honored to participate in this special event on behalf of the Cystic Fibrosis Foundation to raise awareness and funding in support of our mission to find a cure. Like most people, I had very little knowledge or connection to the cystic fibrosis community until our son, William, was born and spent the first 5 months of his life at Cincinnati Children's Hospital Medical Center battling complications from this disease in the neonatal intensive care unit.
Cystic fibrosis is a devastating genetic disease that affects the lungs and digestive system. Breathing treatments morning and night, pancreatic enzymes with every meal, specialty ordered formula and routinely pumped feeds by g-tube, along with nearly weekly provider meetings with his extensive care team are only a handful of activities that impact his life. Fortunately, my loving wife is a clinically trained nurse that can keep on top of everything to give William the best fighting chance at a long and healthy life. But not everyone has the same support system as we do.
Advances continue to be made in finding a cure, but your help is needed now -- more than ever -- to help keep up the momentum of this life-saving research. Sixty years ago, children with CF usually did not live long enough to attend elementary school. Today, because of Foundation-supported research and care, the median survival age of people with CF is about 40. Together, we can make a difference in the lives of those with cystic fibrosis.
Please help me meet my fundraising goal by making a donation. Your generous gift will be used efficiently and effectively to help support vital CF research, medical and education programs.
Making a donation is easy and secure! Just click the Donate button on this page to make a donation that will be credited to my fundraising efforts. Any amount you can donate will be greatly appreciated!
Thank you for supporting the mission of the CF Foundation!