My name is Emery Robinson and I am 13 years old. I am in 8th grade and a member of my school cheer team and school competition cheer team. I am a CF patient, only I was not diagnosed until just 2 years ago. I have 2 of the rarest mutations in the world and I was part of a research study at University of Alabama at Birmingham to help others like me. This year I have spent 40 days inpatient because of Cystic Fibrosis complications between January to the end of March. I had major surgery, missed an entire semester of school, and still managed to make good grades, recover, and make the cheer team again. I was lucky to finally start Trikafta in May and my whole life has changed since!

I was honored to be awarded the Breathing For James award last year, but I was unable to receive it in person because of being hospitalized. I am so excited to present it this year to the next recipient! 

Please keep donating and raising awareness for CF, patients like me with little research to their mutations rely heavily on it to keep living a full life.

To learn more about CF and the CF Foundation, visit www.cff.org. Together, we can make a difference in the lives of those with cystic fibrosis. Thank you for supporting the mission of the CF Foundation!