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Until CF means 'cure found'...

Crystal Brown

Crystal Brown

Hello Friends.

My family has a history with CF.

A genetic-disease, cystic fibrosis (CF) is caused by mutations in the gene that produces the cystic fibrosis transmembrane conductance regulator (CFTR) protein. Cystic fibrosis is an example of a recessive disease. That means a person must have a mutation in both copies of the CFTR gene to have CF.

The advancements in care and treatment for CF throughout the years has been incredible.

At one time, not many who had CF even reached adulthood. And today, the face of cystic fibrosis is changing as adults with CF now outnumber children with the disease. Still, the average life expectancy for those with CF is 37.

Today, I find myself as one of Greenville's Finest honorees with the goal to raise $2,500.

The money will be used to efficiently and effectively to help support vital CF research, medical and education programs.

Please join me in helping the Foundation so that we can one day cure this devastating disease.

Thank you!

Here is a video on what it's like to live with Cystic Fibrosis:

https://youtu.be/ApOf_MCiHtQ

Facts about Cystic Fibrosis:

Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time.

CF individuals have abnormally thick mucus, which blocks the airways (obstruction) and leads to repeated infections and damaging inflammation in the lungs. Treatments are directed at trying to prevent and treat these problems.

Cystic fibrosis is a genetic disease. People with CF have inherited two copies of the defective CF gene -- one copy from each parent. Both parents must have at least one copy of the defective gene.

About 1 in 25 people carry this abnormal gene, and the carriers do not have CF or its symptoms, adds the organization. When both parents pass along this abnormal gene, there’s a 25-percent chance the child will have CF and a 50-percent chance the child will become a carrier. That leaves a 25-percent chance the child will be perfectly healthy and not be a carrier.

More than 30,000 people are living with cystic fibrosis (more than 70,000 worldwide).

Approximately 1,000 new cases of CF are diagnosed each year.

More than 75 percent of people with CF are diagnosed by age 2.

More than half of the CF population is age 18 or older.

In men, CF can affect their ability to have children.

Cystic fibrosis (CF) is the most common fatal genetic (inherited) disease in North America. The average age of those living with CF is 37.

APR
4

Another preview of the silent auction from an awesome local M&M Creations! Insta @MandMCreations00

Y'all. How cool are these cornhole board donated by Back40Life? They'll be at the silent auction tonight at Brewer's Ball! Insta @Back40Life.

MAR
18

Just received the most incredible jewelry donated from DianeLouise.com to be in the silent auction at Brewer's Ball. This particular piece has a pretty powerful and meaningful inscription on the back: CURE CF.

FEB
12

What a meaningful experience! Thank you Lisa DuBose and Dr. Snodgrass for giving the honorees a tour of the GHS Care Center.

JAN
11

We had our kickoff celebration last night at Birds Fly South Ale Project. Ready to raise some awareness and money for CF!

Comments

$2,080
raised of $2,500 goal
 

Recent Donations

1. IPIdaly Partridge
2. CCChristen Clinkscales
$10.00
3. CCChristen Clinkscales
$10.00
4. LDLisa Dwight
$25.00
5. MSMary Sillik
Way to go, Crystal! Whst a great cause!
$100.00
6. ?Anonymous