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Welcome to Megan Habash's Page

Megan Habash

Megan Habash

I will soon be honored by the Cystic Fibrosis Foundation at a special event recognizing individuals dedicated to finding a cure for cystic fibrosis. In accepting this distinction, I have committed to raise money to help the Foundation realize its mission of controlling and curing cystic fibrosis (CF).

Cystic fibrosis (CF) is a rare, genetic disease that progressively limits the ability to breathe and causes a thick buildup of mucus in the lungs and pancreas. As a result, individuals living with CF spend countless hours doing breathing treatments, taking enzymes to aid them in absorbing food, consume countless rounds of antibiotics to fight infections and inflammation and struggle to gain appropriate weight which is critical to healthy lung function. There is NO cure for cystic fibrosis. The median life expectancy is 40, and there is NO government funding to aid in fighting this senseless disease.

Simply put, this is NOT good enough! When Palmer was given this diagnosis, as any mother would, I vowed to be the best mother I could possibly be to him. Unfortunately, many ways I display being a “good” mother entail leaving the playground before the other children in order to fit in another breathing therapy treatment before naptime, spending countless hours at doctor’s appointments and chasing him around the house with all the antibiotics that he is required to take, but clearly doesn’t want to. Being a “good” mom means that we worry about our kids. However, I have worries for Palmer that other mothers don’t typically experience. Will Palmer make it through the next year without hospitalization? Will he be strong enough to participate and enjoy life as other children do? Will his health allow him to experience the joys of parenthood? Will he live past the age of 40? It is truly gut wrenching for me to think about these scenarios for my sweet boy!

Please help me take action in finding a cure for cystic fibrosis. The CF Foundation is the world’s leader in the search for a cure for cystic fibrosis, and nearly every CF-specific drug available today was made possible with the Foundation’s financial support. Because there is no government funding, the Foundation relies heavily on donors, like yourself, to make life-saving treatments possible. Roughly 90 cents of every dollar given goes to finding a cure. Because of generous donations from local supporters over the years, the CF Foundation now has an expectation that by 2020, there will be a life-saving treatment for 90% of the CF population. This is amazing!

However, this may not help people like Palmer. Palmer has one rare mutation; in fact, it is so rare that there are only 30 other people in the world with his mutation. The Foundation is taking many strides towards researching rare mutations, but there is still much more research that needs to be accomplished.

Thank you for being part of our CF journey and helping ease some of our worries. You have no idea how much it means to our family. Hopefully you can look back on this next decade and say that you’re proud of helping CF stand for Cure Found.

With Love,
Megan

Comments

$11,170
raised of $10,000 goal
 

Recent Donations

1. TNThe Nelson’s
Praying for your sweet boy Megan! I pray they find a cure for this awful disease!
$50.00
2. DLDebra Love
$1,500.00
3. AHAmy Habash
$500.00
4. SCSCOTT COWMAN
My heart and prayers go out to you. I hope this helps find a cure. Love ya'll.
5. JHJohn Hasselbeck
We have hope for a cure and we keep Palmer and all those with CF constantly in our prayers.
$2,500.00
6. GGGrant Goodnight