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Joe Killian

Joe Killian

Hi! Before I started my journey with The CF Foundation and 50 Finest, I didn't know a whole lot about cystic fibrosis. I quickly learned how much of a life altering and deadly disease CF is. Affecting not only the person with the disease, but their entire family in ways that are both hard to imagine and inspiring. Meeting children and adults with CF and hearing their stories of personal struggle and perseverance really put this fight into perspective for me.
So there's good and bad news.. the bad-- it's a constant struggle of meticulous maintenance and other health risks that follow CF. Kids taking 300+ pills a week (on a healthy week), fighting for the lives most of us take for granted. The worst of the bad news, there is not a cure for CF.. --> *YET*

The Good News-- To put it simply, medicine has made incredible leaps and bounds in extending the life of people with CF.
Sixty years ago, children with CF usually did not live long enough to attend elementary school. Today, because of Foundation-supported research and care, the median survival age of people with CF is about 40. These people's lives have been made much more full because of the progress medicine has made.

The best news, new life extending drugs are close to FDA approval.
Even better news, a cure to the genetic defect that causes CF is nearly within our grasp.

So how can you help? Check out my events, come meet people involved with 50 Finest and The CF Foundation, and help by donating. Last year the Pittsburgh 50 Finest group raised nearly $550,000 for the CF Foundation. My group aims to top that this year.
The best part, 90% of all donations go directly to support vital CF research, medical and education programs. Which in the non-profit realm is unheard of.

If you're able to make a donation, thank you!
If you want to get closer to me and the 49 others taking on this cause together. Stay up to date with our events and come out to support the cause!

Plus we throw some great events with some awesome people in attendance.

Thanks!

Joe

Comments

$6,346.51
raised of $15,000 goal
 

Recent Donations

$550.00
1. ALAMPd Group Local&Foxtail
$100.00
2. PPittsburgh Penguins
Good work Joe!
$221.51
3. MBMatching Gift Bar Louie
$2,500.00
4. MGMatching Gift
$200.00
5. QPQualin Pitts
$2,500.00
6. DKDiana Killian