Hi everyone! I am so proud to say that I will soon be honored by the Cystic Fibrosis Foundation at a special event recognizing outstanding young professionals in my community, Philadelphia's Finest. In accepting this distinction, I have committed to raise money to help the Foundation realize its mission of controlling and curing cystic fibrosis (CF).
CF is a progressive, terminal, genetic disease that causes persistent lung infections and limits the ability to breathe over time. As mucus builds in the lungs and the body, the internal organs begin to fail, eventually leading to mortality. Unfortunately, there is no federal funding offered for CF, therefore many people are also living with high costs from treatments and hospital bills. For reference, the monthly cost of treatments is in the thousands, even for someone with health insurance.
Due to contributions made by the Foundation, treatments like Trikafta are now available and the life expectancy of people living with CF has increased significantly over the past 50 years from ~5 years to ~35-40.
With the fire from one candle, we can light 100, without that candle's light ever being diminished. The same goes for inspiration. I hope that I can help inspire others to learn about this disease and make a contribution (no matter how big or small) to help me in my mission to make CF stand for cure found.
Sharing the story below, which lit the fire in me:
Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social, and service organization, seeking financial support for CF research. Mary's 4-year-old son, Richard (Ricky), listened closely to his mother as she made each call.
After several calls, Richard came into the room and told his mom, "I know what you are working for." Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had cystic fibrosis.
With some trepidation, Mary asked, "What am I working for, Ricky?" He answered, "You are working for 65 Roses." Mary was speechless.
He could not see the tears running down Mary's cheeks as she stammered, "Yes Ricky, I'm working for 65 Roses."
Since 1965, the term "65 Roses" has been used by children of all ages to describe their disease.
We can work together and find a cure and we can inspire others to join our fight. Together, I believe that we can make CF stand for cure found. Thank you for your contribution!