Also, I reached and surpassed my goal! One of my amazing cf doctors made a generous donation. Thank you Dr. Hajiliadis! My school district is supporting the cf efforts as well with a “Jeans for Genes” dress down day. Teachers love wearing jeans to work. Let’s keep the momentum going!
How I am connected to CF:
How to make a donation:
Please help me meet my fundraising goal by making a donation. Your generous gift will be used efficiently and effectively to help support vital CF research, medical and education programs.
Making a donation is easy and secure! Just click the Donate button on this page to make a donation that will be credited to my fundraising efforts. Any amount you can donate will be greatly appreciated!
What is cystic fibrosis and how you donation will impact the cf community:
I am still blown away a week later. Last week, I sat on a CF Panel with a CHOP doctor, Dr. Ren, a loving parent, Buzz, and such a supportive younger sister of cf warrior. I loved talking about my experiences with cystic fibrosis and how much has changed in the 31 years living with it. I truly enjoyed being an advocate for us adult cfers, who are thriving with this unknown territory due to all the medical advantages. Some of the topics were: drug research and how it has developed and impacted the cf community; what CFF is doing to reach a cure; how various family members offer different perspectives of how they see cf and how it impacts their everyday lives; what is the future for adults living with cf, starting their own families; how cf transplant patients need to continue to advocate for themselves in light of Tricafta due to the new generation of cfers not having the same experiences. There is still so much work that needs to be done and I feel it needs to start to shift to adult cfers. We are reaching new milestones each day and truly beating their statistics. I am so overwhelmed with the immense amount of pride to have “our time” be now! We Are Warriors💜
The photo you have all been waiting for! So glad the rain held off💜
Wow! The Facebook fundraiser is over $1000! Keep an eye out for this weekend to see the crazy picture involving a cookie costume and a purple tutu. I will be walking at the Philly Great Strides event! We are only $320 away from reaching my overall goal of $2500!💜
With this outfit fundraiser it makes us $155 from reaching $2000 with us only $500 away from my total goal of $2500! I am completely and continue to be blown away by the continued support for me as well as the cf community 💜
Now to work our way towards the purple tutu. Thank you to Staci, Alex, Kathy, and Jaclyn for donating. We are only $365 from me adding the tutu to make cookie costume! I know you can’t wait to see this picture 🤣💜
The cookie costume has arrived 🍪💜
We made it to $500 and I will be wearing a cookie costume at the Great Strides walk in Philly on Saturday, April 29. If we can reach another $500, total of $1,000, I will add a TuTu to my outfit! 💜
Thank you to the friends who have continued to donate: Nicole, Cyndi, Michelle, Lindsey, Janine, and Kaitlyn 💜 we are only $140 away from me wearing a silly cookie costume to the Great Strides Walk on Saturday, April 29!
Thank you to the first 3 people to donate to my cookie costume embarrassment 😊 my husband, Chrissy Morrison, and my mother in law 💜. Brings our total to $140!
I just started a fundraiser over on Facebook. If I reach $500 by Friday, April 28 I will wear a cookie costume to the Philly Great Strides event on Saturday, April 29. If you’d like to join me in the walk, let me know! 🍪💜
Can we make it to $1500 by the end of March?!?!? 💜
#motivationalmonday This picture is from last summer when my husband and I went out early one morning fishing. I am sharing this because I was able to wake up at 5am, not having to do treatments and only have to take my medicine (which are only pills) at 7am, and walk out the door. This wouldn’t have happened 5 years ago. The fact that I (and other cf patients) are able to wake up and go with minimal treatments is because of your donations and constant drive to help cf stand for Cure Found. 💜
Thank you to Aunt Joanne and Uncle Jim, Jes Talarico, and Anita for donating towards my campaign. 💜
Thank you to The Groff Family, the anonymous donor, and Kathleen Barr. I am truly blown away by all the support and love you all have shown so far. We have made it over $1000! 💜
Thank you to Aunt Joan, Aunt Cathy, and Uncle George for donating towards my campaign. We are getting closer each day 💜
Happy International Women’s Day! To the two amazing women, Donene and Christina, thank you for donating to my campaign 💜
Is Tablet Tuesday a thing? The medicine on the right is called #trikafta and it’s is a cystic fibrosis medication. It was released in 2019. It has done wonders for many cfers. However it is not a cure all drug and many cf mutations are still waiting for their miracle drug to help with their symptoms. I, myself, started trikafta a month before my transplant and chose to have the surgery because my lungs were to far gone to have this medicine really make an improvement. My doctors and I felt that it would just prolong me from receiving a double lung transplant. Since Jan 2020, I spend a small part of my Saturday evenings making up my weekly pill container. Each day I take about 22 pills. That is a simple trade for the challenges that I was facing daily. With your donation, you could help the @cf_foundation get closer to finding a miracle drug that helps all mutations as well as a step closer towards a cure. To donate and support my campaign click the link is in my profile! #cysticfibrosis #cfsucks #doublelungtransplant #pennmedicine #cysticfibrosisawareness #cysticfibrosisfoundation #cfwarrior
Wow! Blown away! $500 closer to our goal. Special shout out to Aunt Renee, Mrs. Conway, The Bon Family, and Alyson. Onto the next $500 💜
#thursdaystruths sponsored by @motts 🤣 Cystic fibrosis patients can also develop cf related diabetes for when their body doesn’t produce enough insulin. In my case, I had steroid induced diabetes due to my double lung transplant. I was able to be taken off my insulin 6 months post transplant. However, since I went through fertility treatments, to be able to make embryos with my husband, my sugar levels have increased again due to the hormones. This is an ugly truth of cf. As patients, we may have one thing under control while other symptoms keeps us on our toes. To help support research efforts: donate and help spread the word. Any dollar amount helps! #cysticfibrosis #workout #doublelungtransplant #diabetes #fertility #ivfjourney #surrogatejourney #mottsapplejuice #sugarlevels #dexcom #phillysfinest #cysticfibrosisawareness #cfsucks
THANK YOU!! I appreciate Cindy Talarico, Lindsey, Elyse, and Betsy for donating! I have the most supportive friends and family 💜
I went “live” today letting social media know how you can change the future for people with CF”. Thank you to Eileen Mayer for helping us get closer to CF standing for Cure Found 💜 Feel free to share on your own social media and with your contacts to help spread the word!
I am the first honoree with #cysticfibrosis to be chosen. Ps that is a cookie I made 🫁. More details to come!
National Rare Disease Day! I do not left CF define who I am. I am an an adult excelling in my career living with cystic fibrosis. 💜
Today is the first day of the live webpage! Thank you to the anonymous donor for helping me work towards the fundraising goal! You are not only helping me but the CF community as a whole! 💜