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Welcome to Aly Mancuso's Page

Aly Mancuso
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Aly Mancuso

Hello family, friends, and members of the Rochester community! Thank you for visiting my fundraising page and joining me in supporting the Cystic Fibrosis Foundation!

I am being honored by the Cystic Fibrosis Foundation at a special event recognizing outstanding professionals in my community, known as the Rochester's Finest Class of 2023. In accepting this distinction, I have committed to raise money to help the Foundation realize its mission of curing cystic fibrosis (CF) and providing all people with CF the opportunity to lead long, fulfilling lives.

Please help me meet my fundraising goal by making a donation. By supporting my fundraising efforts, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.

In addition to this fundraising page, I will also be hosting an event called the Rochester Maker's Fair on Thursday, August 24th from 5:30-8:30 pm at the Fairport Brewing Company, University Avenue Location. This event will be a silent auction of local craft goods like paintings, artwork, woodworking, jewelry, photography, and more. Event tickets are $15 pre-sale and $20 at the door, and they include (1) drink ticket. All of the money from this event will go to the Cystic Fibrosis Foundation! Please see the event flyer below on my page for more information. *EDIT 9/1/23* Thanks to the generous donations of my friends, family, coworkers, and CFF community, we have raised $3,500 at the Rochester Maker's Fair! This is from ticket sales, 50/50 sales, and silent auction donations. I am so grateful for everyone's support and enthusiasm around this event, as we had 85 people in attendance! Thank you again to the generous folks who donated items to the silent auction- it was a great success.

For those of you who don’t know, Cystic Fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. Sixty years ago, children with CF usually did not live long enough to attend elementary school. Today, because of Foundation-supported research and care, the median survival age of people with CF is over 50. Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Unlike some of the other honorees who have a personal connection to the Cystic Fibrosis Foundation through family members, friends, or their job, I initially had no connection. This is until I got connected with Nicole and Nate DeBraal, my CF Ambassadors who are a family living with CF. Some of my SWBR crew may know these amazing people through Peter DeBraal, their husband and father who used to work in our Education studio and sadly passed away in 2013. Nicole and Nate continue to be involved with the Cystic Fibrosis Foundation, where Nicole serves on the board. Thank you to the two of you for your ongoing support and collaboration. 

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. Sixty years ago, children with CF usually did not live long enough to attend elementary school. Today, because of Foundation-supported research and care, the median survival age of people with CF is over 50. Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

To learn more about CF and the CF Foundation, visit www.cff.org. Together, we can make a difference in the lives of those with cystic fibrosis. Thank you for supporting the mission of the CF Foundation!
JUL
12

Hi All - I am actively looking for donations for my event on August 24th - Rochester Maker's Fair! If you know someone who makes crafts and would be willing to donate to this great cause, please reach out to me and I would love to connect with them!

JUN
20

Hi ALL - Thanks for being so generous in your donations to the Cystic Fibrosis Foundation thus far! I am excited to announce my fundraising event coming up in August - Rochester Maker's Fair! Please see flyer for more information, hope to see you there! - Aly

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$5,961
raised of $3,000 goal
 

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