Welcome to Leah Kraus's Page
Leah Kraus
Leah Kraus
Hi friends! I am being honored by the Cystic Fibrosis Foundation at an upcoming special event recognizing outstanding professionals in CNY. In accepting this distinction, I have committed to raise money to help the Foundation realize its mission of curing cystic fibrosis (CF).
It would mean so much to me if you would consider donating, or buying a ticket to the event! The event, called "Savoring the Salt City," will be held on 10/16 at 6pm at Collegian Hotels & Suites in Syracuse. You'll enjoy food, drinks, raffles and more, and proceeds will benefit the CF Foundation!
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. This includes one of my closest friends, Dayna.
I remember when I met Dayna in college, I was startled to learn that the life expectancy for someone with cystic fibrosis was only in the 30s. That seemed extremely scary, and also somewhat far away at the time. But now here we are, about to turn 40.
Today, because of Foundation-supported research and care, the median survival age of people with CF is over 50. Now, I understand that while that is great progress, we need to do more - and it is possible!
I've watched over the past two decades as my friend has struggled with this disease but also benefitted so significantly from the advent of new treatments. I am beyond grateful to say that with the advent of Trikafta, she is now thriving as a mother of two young, beautiful children.
Unfortunately, Trikafta does not work for every type of CF mutation. It is my dream that, over the next 20 years, additional treatments will be developed that can extend the average lifespan for those with CF into the 60s, 70s, and beyond. The organization's vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and with the rate of progress that has been made, this is truly something that could be accomplished.
Thank you for supporting me, Dayna, and the mission of the CF Foundation!
It would mean so much to me if you would consider donating, or buying a ticket to the event! The event, called "Savoring the Salt City," will be held on 10/16 at 6pm at Collegian Hotels & Suites in Syracuse. You'll enjoy food, drinks, raffles and more, and proceeds will benefit the CF Foundation!
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. This includes one of my closest friends, Dayna.
I remember when I met Dayna in college, I was startled to learn that the life expectancy for someone with cystic fibrosis was only in the 30s. That seemed extremely scary, and also somewhat far away at the time. But now here we are, about to turn 40.
Today, because of Foundation-supported research and care, the median survival age of people with CF is over 50. Now, I understand that while that is great progress, we need to do more - and it is possible!
I've watched over the past two decades as my friend has struggled with this disease but also benefitted so significantly from the advent of new treatments. I am beyond grateful to say that with the advent of Trikafta, she is now thriving as a mother of two young, beautiful children.
Unfortunately, Trikafta does not work for every type of CF mutation. It is my dream that, over the next 20 years, additional treatments will be developed that can extend the average lifespan for those with CF into the 60s, 70s, and beyond. The organization's vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and with the rate of progress that has been made, this is truly something that could be accomplished.
Thank you for supporting me, Dayna, and the mission of the CF Foundation!
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