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Cystic fibrosis is a devastating genetic disease that affects the lungs and digestive system. More than ten million Americans are symptomless carriers of the defective CF gene. Advances continue to be made in finding a cure, but your help is needed now -- more than ever -- to help keep up the momentum of this life-saving research. Sixty years ago, children with CF usually did not live long enough to attend elementary school. Today, because of Foundation-supported research and care, the median survival age of people with CF is about 40. This is remarkable progress, but not good enough. We continue to lose precious lives to CF every day. To learn more about CF and the CF Foundation, visit www.cff.org. Together, we can make a difference in the lives of those with cystic fibrosis. Thank you for supporting the mission of the CF Foundation!
Sunday afternoon, I spent my day walking 1.5 miles with CF Fighter Luca and his family. Luca, now four, was diagnosed when he was just one week old with this devastating genetic disease. Not only is Luca living with CF - he also has been diagnosed with Autism. You may or may not know, but Autism can cause sensory issues for individuals who have it. As part of living with CF, Luca has to wear a vest that shakes his chest to help loosen and break up the mucus in his lungs for 30-45 minutes a day. As you can imagine - that is tough for someone who is already overloaded with stimulation! Luca's story is just one of many I've been blessed to learn about over the last several weeks. I hope to share more with you as we continue to attend events and meet more families affected by Cystic Fibrosis