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Welcome to Jeph Novak's Page
Jeph Novak
Jeph Novak
For the first 22 years of my life, cystic fibrosis (CF) demanded 100% of my attention; it was wholly and completely part of me. It took up all of my time, energy, effort, and focus, so much so that I hardly gave it a second thought.
In 2019, all of that changed thanks to the miracle drug Trikafta.
Thanks to Trikafta, I get to do more, be active without losing my breath as easily. I get to be a foster parent with my wife Noelle, providing a safe place for kiddos to stay when they need it. I get to save for retirement.
My CF Foundation involvement dates back many years ago, when I was probably 6 or 7, doing the Climb for a Cure at the IDS Tower downtown with my sister and CF buddy Anna. It had become our annual tradition to do it together, picking up people throughout the years, making it a big event or just quietly climbing without much fuss. But it was always us together.
When Anna died in 2014 at the age of 23, I was left to keep climbing for us. But I wasn't on my own. The Dinomyte Climbers started, in honor of Anna and in support of all those with CF. The Climb had become a huge event for our whole family and friends.
Admittedly, when Trikafta lifted the burden of CF from my shoulders (lungs?), and when COVID had snuffed out the Climb for a Cure, my involvement in CF awareness and fundraising had also dwindled. Which is why I was so excited and truly honored to be named a Twin Cities Finest Honoree. It is the kick in the pants I needed to get back into advocacy and fundraising for those like me living with CF!
My goal is $5,000, but the Dinomyte Climbers had raised triple that in years past. Medicine like Trikafta is a miracle, yes, but it doesn't just appear; it takes hard work, research, and yes - lots of money.
While we aren't climbing 1,280 steps over 50 flights of stairs, there are still opportunities to get together and raise funds. As a Twin Cities Finest Honoree, I hope to put events together this year to celebrate those living with CF and to raise money for continued research and treatment.
I'd be honored if you joined me!
In 2019, all of that changed thanks to the miracle drug Trikafta.
Thanks to Trikafta, I get to do more, be active without losing my breath as easily. I get to be a foster parent with my wife Noelle, providing a safe place for kiddos to stay when they need it. I get to save for retirement.
My CF Foundation involvement dates back many years ago, when I was probably 6 or 7, doing the Climb for a Cure at the IDS Tower downtown with my sister and CF buddy Anna. It had become our annual tradition to do it together, picking up people throughout the years, making it a big event or just quietly climbing without much fuss. But it was always us together.
When Anna died in 2014 at the age of 23, I was left to keep climbing for us. But I wasn't on my own. The Dinomyte Climbers started, in honor of Anna and in support of all those with CF. The Climb had become a huge event for our whole family and friends.
Admittedly, when Trikafta lifted the burden of CF from my shoulders (lungs?), and when COVID had snuffed out the Climb for a Cure, my involvement in CF awareness and fundraising had also dwindled. Which is why I was so excited and truly honored to be named a Twin Cities Finest Honoree. It is the kick in the pants I needed to get back into advocacy and fundraising for those like me living with CF!
My goal is $5,000, but the Dinomyte Climbers had raised triple that in years past. Medicine like Trikafta is a miracle, yes, but it doesn't just appear; it takes hard work, research, and yes - lots of money.
While we aren't climbing 1,280 steps over 50 flights of stairs, there are still opportunities to get together and raise funds. As a Twin Cities Finest Honoree, I hope to put events together this year to celebrate those living with CF and to raise money for continued research and treatment.
I'd be honored if you joined me!
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