Dearest Friends and Family,

Our annual CF Fundraiser is coming up next month.  I would like to give you a quick update on how Abby is doing.  She started Alyftrek back in February, which is the newest modulator, and has seen tremendous results.  Her lung function last month was over 110%!  She is not seeing any of the negative side effects like she did wither previous ones which is also amazing.   And she is still focused on her plan to become a registered nurse.  

I know they've come so far with treatment because of all the love and support you have shown us throughout the years.  We still need your support.  There is still no cure.  I am committed to raising money to help the Foundation realize its mission of curing cystic fibrosis (CF) and providing all people with CF the opportunity to lead long, fulfilling lives.  Please consider making a donation and/or joining us at the event in November.  By supporting my fundraising efforts, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. Sixty years ago, children with CF usually did not live long enough to attend elementary school. Today, because of Foundation-supported research and care, the median survival age of people with CF is over 50. Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

To learn more about CF and the CF Foundation, visit www.cff.org. Together, we can make a difference in the lives of those with cystic fibrosis. Thank you for supporting the mission of the CF Foundation!

Love,
Nickie