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Asher Dalgleish Quirk
Asher Dalgleish Quirk
Hi friends! If you don’t already know me, my name is Asher Dalgleish Quirk and I’ve had the honor of being selected as one of this year’s Austin’s Finest honorees by the Cystic Fibrosis Foundation.
My involvement with the Cystic Fibrosis Foundation began in 2016, when my niece Harper was born and quickly diagnosed with Cystic Fibrosis (CF), a disease my family had never even heard of at the time. As we have since learned, CF is a progressive, genetic disease that affects roughly 40,000 people in this country alone that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick buildup of mucus in the lungs, pancreas and other organs. In the lungs, the mucus clogs the airways and traps bacterial infections, extensive lung damage and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.
With a minimum of two breathing treatments a day on a healthy day (30 minutes in the morning, and 45 minutes in the evening) including chest percussion and a series of inhaled chemicals, the need to pay constant attention to her food intake in order to calculate the perfect amount of pills to accommodate what she’s ingested at each and every meal, as well as a heightened sensitivity to illnesses that affect the lungs, Harper and all others fighting this disease have a lot on their plate.
After all of this information sank in back in 2016, we quickly created the non-profit organization Harper’s Heroes and have been heavily involved with fundraising for the cause ever since. Alongside the CF Foundation, we’ve co-hosted the 65 Roses Garden Party at Umlauf Sculpture Gardens in Austin, Texas as well as the Tour de Frio, a cycling event out in Leakey, Texas. As participants, we’ve attended several Backyard Balls, Great Strides and Key to the Cures to help support where we can over the years.
A bit more about me? I work in residential construction administration but am currently in the process of making a career shift after seven years in the industry. Outside of business hours, I’m a rostered skater with Texas Roller Derby, as well as their Recruitment Manager and sometimes an announcer. My derby name is Velocithrasher, which Harper thinks is so silly! What can I say—I like dinosaurs!
My goals with this campaign are not only to raise awareness for a disease that has been deemed “invisible,” but to help provide all people with the disease the opportunity to lead fulfilling, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to specialized healthcare. Please help us in adding as many tomorrows as possible for those with CF by helping me reach my fundraising goal of $10,000. A cure is just within our reach!
To learn more about Cystic Fibrosis and the CF Foundation, please visit www.cff.org.
Come celebrate reaching our fundraising goals with this year's Austin's Finest Honorees at Backyard Ball on September 19th at Springdale Station (979 Springdale Rd Suite #160, Austin, TX 78702). Tickets can be purchased here: https://finest.cff.org/austin/Donate/Tickets
Instagram: @HarpersHeroesATX
Email Address: HarpersHeroesATX@gmail.com
Instagram: @TexasRollerDerby
Email Address: Recruitment@txrd.com
Instagram: @CFFCentralTX
Email Address: Central-TX@cff.org
My involvement with the Cystic Fibrosis Foundation began in 2016, when my niece Harper was born and quickly diagnosed with Cystic Fibrosis (CF), a disease my family had never even heard of at the time. As we have since learned, CF is a progressive, genetic disease that affects roughly 40,000 people in this country alone that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick buildup of mucus in the lungs, pancreas and other organs. In the lungs, the mucus clogs the airways and traps bacterial infections, extensive lung damage and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.
With a minimum of two breathing treatments a day on a healthy day (30 minutes in the morning, and 45 minutes in the evening) including chest percussion and a series of inhaled chemicals, the need to pay constant attention to her food intake in order to calculate the perfect amount of pills to accommodate what she’s ingested at each and every meal, as well as a heightened sensitivity to illnesses that affect the lungs, Harper and all others fighting this disease have a lot on their plate.
After all of this information sank in back in 2016, we quickly created the non-profit organization Harper’s Heroes and have been heavily involved with fundraising for the cause ever since. Alongside the CF Foundation, we’ve co-hosted the 65 Roses Garden Party at Umlauf Sculpture Gardens in Austin, Texas as well as the Tour de Frio, a cycling event out in Leakey, Texas. As participants, we’ve attended several Backyard Balls, Great Strides and Key to the Cures to help support where we can over the years.
A bit more about me? I work in residential construction administration but am currently in the process of making a career shift after seven years in the industry. Outside of business hours, I’m a rostered skater with Texas Roller Derby, as well as their Recruitment Manager and sometimes an announcer. My derby name is Velocithrasher, which Harper thinks is so silly! What can I say—I like dinosaurs!
My goals with this campaign are not only to raise awareness for a disease that has been deemed “invisible,” but to help provide all people with the disease the opportunity to lead fulfilling, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to specialized healthcare. Please help us in adding as many tomorrows as possible for those with CF by helping me reach my fundraising goal of $10,000. A cure is just within our reach!
To learn more about Cystic Fibrosis and the CF Foundation, please visit www.cff.org.
Come celebrate reaching our fundraising goals with this year's Austin's Finest Honorees at Backyard Ball on September 19th at Springdale Station (979 Springdale Rd Suite #160, Austin, TX 78702). Tickets can be purchased here: https://finest.cff.org/austin/Donate/Tickets
Instagram: @HarpersHeroesATX
Email Address: HarpersHeroesATX@gmail.com
Instagram: @TexasRollerDerby
Email Address: Recruitment@txrd.com
Instagram: @CFFCentralTX
Email Address: Central-TX@cff.org
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