Welcome to Joshua Benoit's Page
Joshua Benoit
Joshua Benoit
I am being honored by the Cystic Fibrosis Foundation at a special event recognizing outstanding professionals in my community. In accepting this distinction, I have committed to raise money to help the Foundation realize its mission of curing cystic fibrosis (CF) and providing all people with CF the opportunity to lead long, fulfilling lives.
Please help me meet my fundraising goal by making a donation. By supporting my fundraising efforts, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
Cystic Fibrosis has a huge impact on my life, as our daughter has Cystic Fibrosis. She was diagnosed one week into life, through a newborn screening and then later confirmed through a sweat test. She has ___ and ___ mutations. She started a medicine called Kalydeco at one month old and also took enzymes for the first three months of her life. She just became eligible for Trikafta on April 1st. This has been a very difficult process and something that we never imagined that we would experience. Before her being diagnosed we had no idea what Cystic Fibrosis was and now we are fully in it. It is an amazing genetic disease to be apart of as it was found in 1939 and had nothing close to a cure and is now probably going to find a cure within the next 10 years. I can not wait for the day that CF stands for CURE FOUND instead of Cystic Fibrosis.
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. Sixty years ago, children with CF usually did not live long enough to attend elementary school. Today, because of Foundation-supported research and care, the median survival age of people with CF is over 50. Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
To learn more about CF and the CF Foundation, visit www.cff.org. Together, we can make a difference in the lives of those with cystic fibrosis. Thank you for supporting the mission of the CF Foundation!
Please help me meet my fundraising goal by making a donation. By supporting my fundraising efforts, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
Cystic Fibrosis has a huge impact on my life, as our daughter has Cystic Fibrosis. She was diagnosed one week into life, through a newborn screening and then later confirmed through a sweat test. She has ___ and ___ mutations. She started a medicine called Kalydeco at one month old and also took enzymes for the first three months of her life. She just became eligible for Trikafta on April 1st. This has been a very difficult process and something that we never imagined that we would experience. Before her being diagnosed we had no idea what Cystic Fibrosis was and now we are fully in it. It is an amazing genetic disease to be apart of as it was found in 1939 and had nothing close to a cure and is now probably going to find a cure within the next 10 years. I can not wait for the day that CF stands for CURE FOUND instead of Cystic Fibrosis.
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. Sixty years ago, children with CF usually did not live long enough to attend elementary school. Today, because of Foundation-supported research and care, the median survival age of people with CF is over 50. Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
To learn more about CF and the CF Foundation, visit www.cff.org. Together, we can make a difference in the lives of those with cystic fibrosis. Thank you for supporting the mission of the CF Foundation!
Comments