Please help me meet my fundraising goal by making a donation or attending the Brewer's Ball on June 13th, 2024.
By supporting our fundraising efforts, you have an opportunity to be part of ending this disease. Please consider joining us and help make medical history.
To learn more about CF and the CF Foundation, visit www.cff.org. Together, we can make a difference in the lives of those with cystic fibrosis. Thank you for supporting the mission of the CF Foundation!
This one's for Nellie!
My Niece, Nellie, was diagnosed with CF at birth through genetic testing in Seattle, WA. The Seattle Children's CF Program has supported Nellie, and her family, through specialized treatments and social/ emotional support. Nellie follows a strict routine each day to maintain her health and happiness! We are accustomed to feeding her enzymes ahead of each meal and she enjoys watching Elmo during her respiratory therapy.
We are eagerly awaiting her 2nd birthday this summer, where she will be given her first treatment of Trikafta (the first triple combination therapy available to treat patients with the most common cystic fibrosis mutation). This treatment will help prevent lung damage and the onset of CF complications.
Medical research is accelerated by fundraising and donations from communities like ours. My family is thankful for your time learning about CF and your support of Nellie as she travels down this challenging and ever changing path!